A guide to interpreting estimated median age of survival in cystic fibrosis patient registry reports

International comparison of median age at death from cystic fibrosis.

STUDY OBJECTIVES To compare international trends in mortality from cystic fibrosis. DESIGN Comparison of trends in median age at death using national mortality data. SETTING Data from 10 countries in North America, Europe, and Australasia. PARTICIPANTS All persons registered as having died of cystic fibrosis in specified years from 1980 to 1994. INTERVENTIONS Comparison of relative odds...

Cystic Fibrosis. A Guide for Patient and Family

currently known about each disorder. Not even the current psychobiological theories are presented in sufficient depth. For a student or layperson who is unfamiliar with psychiatric diagnoses, Psychiatric Diagnosis would be a useful guide. It would also be useful to a clinician seeking a quick review of a particular diagnostic category. In general, however, there are many more comprehensive text...

Cystic fibrosis mortality: registry data of cystic fibrosis.

BACKGROUND The Cystic Fibrosis Foundation has been collecting mortality and other data on cystic fibrosis patients from over 100 U.S. clinical centers since 1966, and publishes annual reports of the data. Cystic fibrosis is an important autosomal recessive genetic disease, affecting multiple body systems, with disability and early mortality as very common complications. RESULTS Observed data ...

Allergic bronchopulmonary aspergillosis in cystic fibrosis. A European epidemiological study. Epidemiologic Registry of Cystic Fibrosis.

Allergic bronchopulmonary aspergillosis (ABPA) is a disease resulting from a hypersensitivity response to Aspergillus fumigatus, although the pathogenesis of the disease is unknown and its prevalence in cystic fibrosis (CF) is still poorly defined. Data from the Epidemiologic Registry of Cystic Fibrosis (ERCF) on 12,447 CF patients gathered from 224 CF centres in nine European countries were an...

Predicting survival in cystic fibrosis.